In acknowledgement of Celiac Awareness Month and in support of my three-year old son who was recently diagnosed, I decided to take a pledge of going gluten-free for the month.
I have been impressed by the wide-array of support which has
contributed to making this journey fairly easy. Gluten-free options avail at
groceries stores and at restaurants. For the most part, servers have been knowledgeable
and helpful – no one has made me feel like a high-maintenance, trend-following customer
when I ask about gluten-free options.
I recently bought a 5lbs bag of almond flour and I have no
idea what do with it. I keep spending
money on gluten-free groceries because I don’t know what else to do. Somehow, I
think that buying all of this shit is going to help heal him, help soothe him,
to help soothe me, and provide me penance for not catching “it” sooner.
The specialists explained that we needed to re-introduce
gluten into my son’s diet before the endoscopy and biopsies. My husband and I have had a hard time doing
this, especially since we have seen a noticeable and positive difference in our
son’s health since he has gone gluten-free.
We decided that once the appointment was a
week away, we would re-introduce the gluten and give him on gluten filled item each day.
The surgery was today. According to the doctor who
performed the procedures, the cillia growth was not conclusive. She decided to
conduct seven biopsies to help enhance the diagnosis. I am now fearful that we
did not give him enough gluten and we will have to go through this again. The
saga continues and we will know more in about a week. In the meantime, we are
back to leading as close to a gluten-free lifestyle as possible.
I have been 100% gluten-free since May 1, that is, until
this past weekend. I gave myself an “out” for three reasons – 1) it was my
birthday/mother’s day 2) I ran my first 5K 3) my son has been eating some
gluten this week in advance of his procedure.
My first non-gluten
free items were not mind blowing in any way. It was an entirely impulsive choice to even
go off the diet. It was Mother’s Day (Sunday) and I was running my first road
race. I have never done anything like this before and did not realize how much
of a big to-do it would be. Since the race was for charity, there were tons of
donations made by local restaurants. I ate about 1/8 of scone before the race
and a half of hot dog after the race. I
split the hot dog with my son. To him it was just another hot dog, yet to me it
was an example of me giving in, giving up, and sacrificing my integrity. For what?
Free food? Instead of feeling satiated by the gluten bites, I felt shame
and guilt.
I don’t have celiac disease. My gluten-free crusade is
optional. It is for a month. I did not
even last two full weeks before having a lapse. Celiacs don’t have a choice. My
son does not have a choice.
So well written!
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