My
son's doctor called earlier this week to confirm that his endoscopy and
biopsies supported the recent Celiac Disease diagnosis. The staff at Boston Children's Hospital, the Celiac Clinic, and the Growth and Nutrition program have
been truly amazing. The medical providers and support staff are incredibly
knowledgeable, helpful, and supportive. The receptionists call us
to book follow up appointments. They advise how us on how to position care for optimal insurance coverage without us having ask any questions. Not once
have the doctors made us feel rushed or unimportant. Our doctor offered us his
cell phone number and e-mail address. In thirty something years of life, I have
never had a doctor give me his/her cell number or e-mail address. Am I dreaming? Is this really 2014?
Doctors do this? Boston Children's Hospital is best practices in motion and we
are incredibly grateful.
The next step is for us to attend the Celiac nutrition class offered monthly by the Growth and Nutrition unit. It is here that we will learn about all of the intricacies of Celiac and a gluten-free diet. In the meantime, we have been making it work and it has not been half bad. Well, last night's gluten-free pizza take out was half bad. Otherwise, it has been going well.
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